‘My Twins Had Same Scary Diagnosis As Jesy Nelson’s – We Were Given Three Choices’

A COUPLE WHOSE 16-WEEK OLD TWINS WERE DIAGE WITH THE SAME TWIN-TO-TWIN TRANSFUSION SYNDROME

A mum who was tragicly gioven the option to terminate Her pregnancy after twins were diagnosed with the Same Life -Thethening Condition as Jesy Nelson’s NewBorn Girls has sent her Heartfelt Congratulations – and Says She Knows How the Little Mix Mix Mix Felt.

“It ‘fantastic News that Jesy Has Delivered Two Healthy Babies,” Says Victoria and Her partner Darren Burgess, as they do their congratulations to jesy and zion foster on the Birth of 31-Week-Ocean Nelson-Foster and Story Monroe Nelson-Foster.

And admits, “I know exactly how worked she woupe have ben about giving birth Because an ultrasound revealed our 16-wek-elek twin-to-twin syndrome (ttts) Pregnant. ”

Victoria, 35, and Her Partner Darren, 33, Whose 19-Month-Old Boys Are Now Healthy and Well, Says, “TTTS Can Affect Everyone Differently-I didn’t have to stay in hospital for 10 Weeks Like Jesy, i did have to have lots of rest, as close Possible, to protest the babies.

“And i had lots of mri scans while pregnant on my babies’ brains-like jesy will have done too-there are were any Development problems, but they were fine. And on the day of my c-section at the musgrated in taunton, i really worked the health and thougha ‘Have i done everyThing of Can?

The Couple Were overjoyed to be Expecting when they are attended 12-Week scan, but they were in for a shock. Darren has non -suggestted they might be hating twins, but Victoria was convinced otherwise.

“It was in my mind that it is all. I just at all. “We don’t have any twins in our families, so i didn’t ede think it would be an option.”

But sura Enough, as the sonographer examinated the Screen, she Announed the Unexpectted News: They were Expecting Two Babies. “I saw the sonogrape look quite quito over the which area. I thought i saw a Second embryo,” darren recalled. “The Measurements were all done for one baby, and then the sonograpers Said, ‘here’s baby number two’. Victoria’s jaw hit the floor.”

Howver, Their Joy Quickly Tourned to World A 16 -Week Scan Revealed Something Alarming – One Twin Had No Visible Kidneys or The Other Had Excesses Fluid in Their Sac. Doctors Diagnosed the Pregnancy with Twin-to-Twin Transfusion Syndrome (TTTS), A Rare But Life-Threatening that Affects ARUND 10 to 15 Identical Twins Who Share a Placenta.

The Couple, From Bristol, Were Given Three Options: Undergo specialist Laser surgery, will not do and risk complications, or terminates the pregnancy. “Having a termination was never in our heads,” Darren Said. “We have chose to have laser surgery, like jesy, which is to basically remove the Bad leading of the placenta where nutrients were Being taken from one baby to another.”

Victoria tourned to the Twins Trust Website for Support and Information, Finding Sorace in Reading the Experiences of Other Families Who Had Faced TTTS. “At that point, of Hadn’t Heard of TTTS,” she admitted. “That’s wen the twins website was really helpful – I felt Very Lonely and Confused, and Reading About Other People’s Experiences Helped.”

A Week after the diagnosis, Victoria underwent Laser surgery to Save Her Babies. “We knew it could rapidly escalate, and they were worked about one of the twins,” she said. “The Other Twin’s Sac Was Getting Bigger and Bigger.”

The procedure was a success, but victoria endured week of complications, Including Fluid Loss and Multiple Hospital Visits. At 33 Weeks, sturgery bleeding signalled that the twins were on their way.

Born Via C-Section in September 2023, Ezra and Arlo Entered the World At 34 Weeks and One Day, in a Theater Packed with 26 Medical Staff. In a dramatic twist, a student trainee fainted During the Birth.

“Ezra and Arlo Were Born Weighing 4lb 2oz and 4lb 7oz,” Sayys Darren. “Arlo was breathing on hiss while while ezra Needed a kickstart, but after a couple of days, they were ok.”

Despite spending weeks in nicu and intense care, the twins fough through their early challenges, including surgery for hernias, and are now thriving. Victoria, Who Praised the Staff at Musgrove Hospital in Taunton, Said She’s Determined Not to Let the Challenges of Having Hold Her Back.

“While the boys were kept in special care i had time to recover mySelf. They are now 19 months Old and their development has been normal so there is no reason why ttts should i say in futures.

“Howver is Been Pretty Intense for US SINCE THEY WERE BORN, AND WE’VE HAD THE ADDED WORRY THAT WAS DIAGE WITH A GRADE 2 BRAIN TUMOUR, WHICH HAS NOW BEEN REMOVED.

“We struggled with sleeeping at first as being twins they have eAch other up. Breast feeding and four hours was hard work and for the first month we all slept in the sitsting room as it was too awkWard to get utstair. And i’m not going. SLEEPING IN OUR BEDROM!

“I Enjoy Taching the Boys to Clubs and Don’t Let the Fact I Have Twins Stop with From Doing Anyding,” She Said. “Looking back on the ttts, think it important to have Honest Conversations. I have never heard of the syndrome before, so tried to educate mySelf. I was never flush ino any decisions-the hospital staff were open-minded and gave us time.” “

Darren Advised other parents facing simillar diagnoses to always Ask Questions and Hold on to Hope. “We just kept on hoping,” he said. “We hung onto that hope and had positive outcomes.”

The Couple, who also Completed the Twins Trust Antenatal Course to Help Prepare for Their Journey, are now -focused on Raising Awareness of Help Other Families. And they more good wishes to the happy new parents, jesy and zion, and offferr advice on how to put on the added strain of twins.

“We’d like to be Jesy and Zion our Congratulations and Tel to Accept All the Help they Offered, Embrace Parenting As Best They Can – Eights Get Hard – and Take Regular Breaks.

“Our boys are lovely and we Hope in Future Being twins they will kep each other entertained and look after Each Other. We’re Very Lucky to Have.”

“We are Also Want to Say Thank You to Turn Trust for Being There for USA really Needed the Support,” Victoria Said. “It was quite a lonely and worrying time.”

For Support and More Information, Visit www.twinstrust.org