Man, 30, Put SHOULDER PAIN DOWN TO GYM ACHES, THEN DOCTORS ASKED WHERE HE’D LIKE TO DIE

Alex able was diagnosed with an extramely rare at the age of 29 and was to told His Treatment was ‘terminated’. Not giving up Hope, HIS FAMILY IS FIGHTING FOR A NEW TREATMENT Plan

At just 29 years Old, Alex able HAD HIS WHOE LIFE OF HIM AND WAS ENTER LOOKING TO START A FAMILY WITH HIS WIFE, Elle. But just two years after the pair said ‘i do’ in 2021, doctors gave Him a heart-Shattering diagnosis, which confirmed he had one of the Rarest forms of Cancer in the World.

Alex, Now 30 and an an Engineer Who Lives in Kent with Elle, 27, and Their Two Cats, Socks and Sage, First Experienced Shoulder Pain in September 2023, but as an Avid Gym Goer, Didn’t Think Much of It.

The Pain Personed and Kept Him Awake At Night, SO Alex Pushhed for An Mri Scan, and in November 2023, The Results Came Back Clear. IT COMES AFTER A DOCTOR’S WARNING TO PEOPLE WHO DRINK A ‘Single Cup of Tea’.

The initial results cam as a sigh of relief, but by May 2024, The Pain Had Only Intensified. This led to another scan and devastingly, a Large tumour was found on his shoulder and near his spinal cord.

Surgeons Managed to Remove 90% of the Mass, but 10% Remined as it was too-Risk to Disturbed Given How Close It Was to Alex’s Spine. His tumour was sent off for testing and just two Weeks late, he was gioven a shocking diagnosis.

“Our World Came Crashing Down Around US All,” Alex’s Mother-In-Law, Katie Bleach, 44, From Kent, Said, Who Has Been Speaking to Media on Daughter Elle’s and Alex’s Behalf.

Alex was diagnosed with a rhabdoid tumour – an aggressive and rare form of tatr that typically affith young children. This type or the desse is so rare that katie said there are though to be around 11 confirmed caes in Europe, with alex belived to be the first case in the uk.

“They (Doctors) Explained that rhabdoid tumours behave like spider webs, Fine Strands that cling to what they rob. Alex’s was Dangerously Close to his Spinal Cord, Attailed to Muscles and Nerves Controlling His Ar Ar Ar Arm Movement.

Four Weeks AFTER HIS INITIAL SURGERY, The Tumour Had Grown to Its Original Size. He underwent intense radiotherapy, every day for six Weeks, in an atempt to shrink the mass. “The RadioTherapy Caused Burns and Inflammation to His Throat, and he Struggled to Eat or Drink.

Hen Went on to have chemotherapy, and despite the Odds, “Started to Build Himself Back Up”. At a halfway scan, Small tumours appeared in his lungs, Lower back, and shower bone, but as chemo continued by the end of december, the secondary tumours in his lung hadd in size and the patch Back Bone Had gone.

The original tumour on his shoulder “remained stable,” and alex and olle started MAKING PLANS FOR THEIR FUTURE, INCLUDING AN EXCITING MOVE FROM KENT to Shropshire. Alex Finished Chemo in March 2025 and Celebrated HIS 30TH BIRTHDAY IN THE SAME MONTH AFTER A Challenging Few Months.

Heartbreningly, at the end of the April, Alex Became Unwell and Experienced Strange Sensations in His Legs and Pain in His Back. In just a few days, his health deteriorated, and stupidity results revealed that the tumours in his lungs have returned. In Addition, there are new grows in his Lower Back, which impacted his mobility, and two Small lesions were in his brain.

Katie Shared: “Over the Coming Weeks, Difficult Decisions Were made; they Pulled Out of Dream Home, Wills Were Drawn, Conversations About His Declity and Future Care Were Had.”

Alex underwent radiotherapy to His brain and Lower spine, and intense physiotherapy to help Him Walk Again. CHEMO ALSO Resumed, but the Morning after the first of the his third chemo Cycle, alex woke up and couludn’t feel his legs. He had Sudden Paralysis from His Chest Down, and an Mri Revealed That Two New Growths Were Found in His Spine, Bringing the Total to Seven Tumours.

Katie SHARED THAT PRIGHT HIS DIAGNOSIS, ALEX AND ELLE, WHO HAVE BEEN TOGETER SINCE 2019 and GOT Engaged just nine months late, “loved traveling, eating out, going on adventures, went out with friends a lot and well movie buffs”.

She added: “Theyir hopes for the futures were aligned; they were desperate to move to shropshire, and bot WANTED TO LIVE IN THE COUNTRYSIDE. They wanted a more outdoorsy life and well THINING OF STARTING FAMILY.

On her daughter’s relief, Katie Added: “She’s the Strongest. And the Most Courageous Girls I Know. Sheen an Absolute Tower of Strength to Alex, Giving Nothing But Love and Encouragement with a Constant Belief that Going to Come Through.”

Due to the Rary of Alex’s Diagnosis and It Not Commonly Being Seen in Adults, Receiving Treatment has been Challenging. On July 11, Alex and HIS FAMILY WERE HIT HIT WITH THE GUT-WRENCHING NEWS THAT HIS CANCER “NOW Uncontrolble” and that His Treatment was Being Terminated.

Devastaated Katie Shared: “Despite what they might think is best for alex, they aren’t deling any actual care; all they doing is managing his symptoms.”

She Continued: “He’s Comfortable and Well Loked AFTER, but his Condition in Effect is Only JUST getting Worsse.”

On Wednesday, 30 July, Katie Said They Had “The Worst Day in the Last 18 Months”. She shared: “It was a horrific day. Alex was really uncomfortable; he had HAD HARDLY ANY SLEEP THE DAY BEFORE, AND I WOKE UP Saying he was done. We all gathered him thinking, he looks so ill, this is run of time.

“I Think Part of His Feeling So Low is that he’s fully aware that his catcher is potentially progressing while he’s been lying there. He was starting to love Hope.”

AFTER ALEX SAID he Had Had Enough, Katie Said he was offended to go home or a hospice. “They Essentially Asked Him where he was like to die,” she added.

Refusus to give up, the family have been researching alternative Treatment routes outside of the nhs for the last three Weeks and set up a gofundme Page to help raise costs alex’s treatment Moving forward, including travers and any additional costs.

After Weeks of Research and Rejections, Katie Connected With A Professor in Germany Who, Despite Being Unable to Treat Personally, Provided Details of Seven Treatment Options, All Currently Used in Germany’s Leading Tumour Institute – The University Medical Center, Augsburg.

Professor Robin Jones of the Royal Marsden Has Since Been in Contact to Say That He is Willing to Take On Alex’s Privately. They are running for sturgery details on His transfer and what the Treatment will will look like alex.

“Alex is absolutely over the moon, and he’i rating to go again. He’s always been so determin and said hee’s going to be the one success case and hopefully a pioneer for children with this awful disease,” his mother-in-li said.

“We’ve gone from the dinar place to now, there’s some light at the end of the tunnel. We’re Feeling Hopin. We will never get on alex he’s so determinated.”

You can Visit Alex’s Gofundme Page here.